Galien week of innovation

Oct. 30 2025
Speaker Bios
PANEL 1 / 8:40 AM - 9:35 AM
Transforming Innovation into Patient Outcomes: Grounded in Community, Guided by Science

Katie MAZUK
Chief Patient Experience Officer, Novartis US
As Chief Patient Experience Officer for Novartis US, Katie leads Novartis Patient Support (NPS), the organization whose sole focus is to ensure that anyone prescribed a Novartis therapy can start—and stay—on treatment.
For nearly 20 years, Katie has built and led global organizations focused on improving the experiences of patients and healthcare professionals. Prior to joining Novartis, Katie held roles in research & development, supply chain, and commercial functions at Johnson & Johnson, and most recently served as Senior Vice President, Patient Engagement and Customer Solutions, where she was responsible for delivering frictionless experiences for patients and healthcare professionals.
Katie is a people-first leader who is passionate about the roles leaders play in creating the environment for innovation and growth. She is a mentor to many talented men and women in healthcare and has been a champion of employee resource groups throughout her career.
Katie earned an MBA from The Wharton School Business at the University of Pennsylvania and a Bachelor of Science degree from Clemson University. A lifelong learner, she has continued to study Artificial Intelligence and Data Science at UC Berkeley Haas School of Business and The Saïd Business School at the University of Oxford.

Uché BLACKSTOCK, MD
Founder and CEO, Advancing Health Equity (AHE)

Uché BLACKSTOCK, MD
Founder and CEO, Advancing Health Equity (AHE)
Dr. Uché Blackstock is a physician, thought leader, and the Founder and CEO of Advancing Health Equity (AHE). A former Associate Professor in the Department of Emergency Medicine at NYU School of Medicine, she also served as Faculty Director for Diversity Affairs. In 2019, she launched AHE to partner with healthcare organizations, embedding equity into leadership, strategy, and clinical practice. Over the past five years, AHE has helped hospitals, health systems, and companies design strategies to advance equitable care.
Dr. Blackstock is a former MSNBC medical contributor and her writing has appeared in The Washington Post, Scientific American, Chicago Tribune, and New York Magazine. She has been recognized by Fortune as an Innovator Shaping the Future of Health (2023), and TIME as one of the 100 Most Influential People in Health (2024). Her memoir, LEGACY: A Black Physician Reckons with Racism in Medicine, became a New York Times bestseller in 2024.

Molly GUTHRIE
Vice President, Policy & Advocacy, Susan G. Komen

Molly GUTHRIE
Vice President, Policy & Advocacy, Susan G. Komen
Molly Guthrie joined Susan G. Komen in 2009. Currently serving as the Vice President of Policy and Advocacy, she is responsible for leading Susan G. Komen’s public policy and advocacy efforts through Komen’s Center for Public Policy. As such, Molly oversees Komen’s work to advance key legislative and regulatory objectives at the federal, state and local levels.
In this role, she focuses on policy campaigns to increase funding for medical research and screening programs, and ensuring access to affordable, high-quality breast health and cancer care services. In addition to working on policy campaigns, her team works on increasing capacity for policy and advocacy work with grassroots volunteers across the country.
Earlier this year, under Molly’s leadership, Komen founded the Alliance for Breast Cancer Policy. A cooperative space of breast cancer stakeholders for shared policy development, consensus building, information sharing, and collective advocacy, the Alliance for Breast Cancer Policy drives federal policy changes needed to address the most pressing issues faced by the breast cancer community.

Michael W. HODIN, PhD
CEO, Global Coalition on Aging; Managing Partner, High Lantern Group

Michael W. HODIN, PhD
CEO, Global Coalition on Aging; Managing Partner, High Lantern Group
Michael W. Hodin, Ph.D. is CEO of the Global Coalition on Aging, Managing Partner at High Lantern Group, and a Fellow at Oxford University’s Harris Manchester College.
He has spoken internationally on aging, including at G20, APEC, Davos, and the World Knowledge Forum. From 1976-80, Mike was Legislative Assistant to Senator Daniel Patrick Moynihan.
He was a senior executive at Pfizer, Inc. for 30 years, where he created and led International Public Affairs and Public Policy operations.
Mike holds a BA, cum laude, Cornell University, M.Sc. from The London School of Economics, and M.Phil and Ph.D. from Columbia University.

John M. O’BRIEN, PharmD, MPH
President and Chief Executive Officer, National Pharmaceutical Council

John M. O’BRIEN, PharmD, MPH
President and Chief Executive Officer, National Pharmaceutical Council
John M. O’Brien, PharmD, MPH, is President and Chief Executive Officer of the National Pharmaceutical Council (NPC), which serves patients and society with policy-relevant research on the value of patient access to innovative medicines and the importance of scientific advancement. We envision a world where advances in medicine are accessible to patients, valued by society, and sustainably reimbursed by payers to ensure continued innovation.
Dr. O’Brien’s experience spanning the private sector, academia, and government gives him a unique perspective on the business risk of public policy. Prior to joining NPC, Dr. O’Brien was senior advisor to the U.S. Secretary of Health and Human Services and deputy assistant secretary of planning and evaluation (health policy) during the previous Trump administration. He has also held senior roles in the life sciences and managed care industries, was a career official at the Centers for Medicare & Medicaid Services (CMS), and served as a health policy fellow in the U.S. Senate.
Dr. O’Brien earned his doctorate in pharmacy at Nova Southeastern University, his master’s degree in public health at the Johns Hopkins Bloomberg School of Public Health, studied pharmacy and public policy at the University of Florida and is a graduate of the AHIP-Kellogg Certified Health Insurance Executive program.
He has held a number of academic appointments, including senior fellow at the USC-Schaeffer Center for Health Policy and Economics, clinical assistant professor at the Rutgers Pharmaceutical Industry Fellowship program, and assistant professor of clinical and administrative sciences at the Notre Dame of Maryland University College of Pharmacy, the first program of its kind created by a U.S. women’s college.
Dr. O’Brien has served on the boards of Pharmacy Quality Solutions, Kennedy Center Circles, and the Congressional Chorus and is an instrument-rated private pilot.
PANEL 2 / 9:40 AM - 10:35 AM
Reimagining the Aging Patient: From Lifespan to Healthspan

Jeremy ABBATE
Vice President & Publisher, Scientific American
Jeremy Abbate is the Vice President & Publisher of Scientific American and all of its related titles. He founded Scientific American’s biotechnology brand extension, Worldview, as well as many other new programs and collaborative ventures in global health, medicine, planetary sustainability, energy, security, the environment and neuroscience.
Abbate appears frequently at conferences and events to facilitate high-level discussions on healthcare, innovative science and technology, policy, and scientific entrepreneurship. He has spearheaded co-branded partnerships with several international organizations and corporate entities, including The Carter Center, The Bill & Melinda Gates Foundation, Johnson & Johnson and Google Health.
His writing has appeared in The Wall Street Journal, Forbes, Psychology Today, and other national publications. Abbate penned the forward to the popular medical travel guide, Patients Beyond Borders. As a trained musician, performer and composer, he is passionate about the links between science and the arts.
He lives outside of New York city with his family and mini cockapoo.

Michael CLINTON
Founder & CEO, ROARforward

Michael CLINTON
Founder & CEO, ROARforward
Michael Clinton, in partnership with Hearst, is founder and CEO of ROAR Forward, a business-to-business intelligence, insights and content platform. ROAR Forward’s primary focus is the new demographic segment of individuals aged 50+ who are redefining the second half of life in their careers, passions and lifestyles. ROAR Forward offerings include the ROAR Report with proprietary data and research, bulletins, seminars, workshops, along with original content and events that shed light on the dynamically changing market demographic of individuals aged 50-plus who now comprise 35% of the population.
Clinton serves on the board of The Stanford Center on Longevity and is a globally recognized speaker about the New Longevity. In December 2023, he was named to Estee Lauder’s first-ever Longevity Collective, a curated group of influential experts and global pioneers in longevity science and lifestyle. Clinton’s best-selling book, ROAR into the second half of your life, now in its fourth printing, is the springboard for ROAR Forward. He is a contributing writer for Esquire, Men’s Health and Oprah Daily where he frequently covers the topic of the new longevity movement.
In May 2019, Clinton was named senior media advisor to the CEO of Hearst after 21 years at the company. Previously, he was president of marketing & publishing director of Hearst Magazines and was a member of the board of directors of Hearst Corporation. Prior to that, Clinton was executive vice president of Condé Nast Publications.

Patrick KULLENBERG
Chief Innovation Officer, North America, L’Oréal Groupe

Patrick KULLENBERG
Chief Innovation Officer, North America, L’Oréal Groupe
Patrick Kullenberg is a senior executive in the global beauty industry with experience in branding, innovation, and go-to-market strategy. He currently serves as chief innovation officer at L’Oréal USA, where he leads the North America Innovation Hub. In this role, he focuses on identifying consumer needs, market dynamics, and macro trends to develop the product pipeline for the region. He also oversees global innovation for several beauty categories.
Kullenberg has held leadership positions across a number of L’Oréal brands and divisions, including serving as brand president for Kiehl’s, Biotherm and IT Cosmetics. His work has included strategic development in branding, product innovation and retail.
He has lived and worked in Brazil, Mexico, France, the United Kingdom, the United States, Spain and the Nordic countries. He is fluent in five languages and brings an international perspective to his work.
Kullenberg is based in New York City, where he lives with his husband, two children and two dogs. He has a personal interest in photography and travel.


Dr. David Luu is a cardiac surgeon, tech entrepreneur, and philanthropist pioneering the integration and scale of longevity medicine to extend human healthspan.
Dr. Luu has founded multiple health tech platforms, including Hearty, a concierge longevity care app and services for high-performing leaders; Juisci, an AI-powered medical education app used by 100,000 healthcare professionals and researchers; and Longevity Docs, the first network dedicated to physicians pioneering precision and evidence-based practices in longevity medicine.
As a thought leader in longevity, technology, and global health, he has been featured in prestigious publications such as Wired Magazine, Huffington Post, Hollywood Reporter, and Men’s Health.
He has been invited to speak at leading forums, including the Web Summit, World Heart Summit, Transform Africa Summit, and the United-Nations World Humanitarian Summit where he influences and inspires an international audience.
Dr. Luu serves as a member of the Board of Advisors for the Biomedical Engineering and Imaging Institute at Mount Sinai Icahn School of Medicine. In this role, Dr. Luu helps accelerate the development of novel medical inventions across various fields, including imaging, nanomedicine, AI, robotics, and sensors. Since 2001, Dr. Luu has been at the forefront of humanitarian efforts, notably through his role as the founding chairman of The Heart Fund, a United Nations ECOSOC-accredited non-profit organization democratizing cardiac care in developing nations through preventative mobile clinics and open-heart surgeries in Africa, India, and Haiti. He is a French board-certified surgeon with fellowship training in pediatric cardiac surgery at leading pediatric heart hospitals such as Marie-Lannelongue and Necker in Paris.
He completed his residency at the University of Antilles-Guyane and his research training at Lenox Hills Hospital in New York City, with his medical education from Montpellier University. Dr. David Luu resides in New York with his wife, Moana Luu, and their son, Tayron-Khan. As a passionate advocate for health optimization, he enjoys playing tennis and is a healthy cooking enthusiast.

Qian ZHENG, MD, PhD
Senior Vice President of Advanced Research, North America and Global Head of Regenerative Beauty, L’Oréal Groupe

Qian ZHENG, MD, PhD
Senior Vice President of Advanced Research, North America and Global Head of Regenerative Beauty, L’Oréal Groupe
Dr. Zheng is a seasoned innovation leader and a highly accomplished professional in the research field of regenerative medicine and dermatological beauty.
Dr Zheng received her MD from Beijing Medical University, China, with a focus on dermatology and dermatopathology. She completed her postdoctoral fellowship in skin development and pathology at University of Texas Southwestern Medical Center in the US, where she has developed multiple in vitro and clinical systems to investigate human dermatological conditions, including genetic disorders, wound healing and tissue regeneration, inflammatory diseases, skin quality, and aging.
Dr Zheng held over 30 innovation patents, and co-authored more than 40 scientific and medical publications and multiple book chapters.
Zheng is based in New Jersey, where she lives with her husband, son, and their cat. She has a personal interest in Asian arts and Peony gardening.
PANEL 3 / 10:40 AM - 11:35 AM
Beyond BMI: Precision Obesity Care

Keri HILDICK
Chief Strategy Officer, Perspectum
Keri Hildick serves as Chief Strategy Officer at Perspectum, where she spearheaded the creation of its Pharma Solutions division and has since driven its growth through strategic market, regulatory, and payer initiatives. Her leadership has been central to commercializing innovations such as LiverMultiScan, MRCP+, and CoverScan – expanding access to advanced imaging biomarkers that move beyond traditional metrics to provide clinicians and patients with richer, more precise insights into metabolic health and chronic disease.
Keri is an active voice in healthcare innovation and also serves as a Director of Oxford Centre for Diagnostics Ltd, contributing to regional diagnostics strategy in the United Kingdom. Beyond her corporate roles, she is a passionate advocate for earlier diagnosis of chronic conditions. Living with endometriosis herself, she champions reducing diagnostic delays and advancing patient-centered care, aligning with broader policy initiatives.
Keri holds a Ph.D. in Molecular and Cellular Neuroscience from the University of Bristol and a B.Sc. in Pharmacology with Industrial Experience from the University of Edinburgh.

Jaime ALMANDOZ, MD, MBA, FTOS
Medical Director, Weight Wellness Program; Professor of Medicine, Division of Endocrinology University of Texas Southwestern Medical Center

Jaime ALMANDOZ, MD, MBA, FTOS
Medical Director, Weight Wellness Program; Professor of Medicine, Division of Endocrinology University of Texas Southwestern Medical Center
Jaime Almandoz, MD, MBA, MRCPI, FTOS, is Medical Director of the Weight Wellness Obesity Medicine Program and Professor of Medicine at the University of Texas Southwestern Medical Center.
Dr. Almandoz earned his medical degree from the Royal College of Surgeons in Ireland, completed residency in Internal Medicine and fellowship in Endocrinology at the Mayo Clinic, and completed a fellowship in Nutrition and Metabolic Diseases at UT Southwestern. He is board certified in Endocrinology, Internal Medicine, and Obesity Medicine.
Dr. Almandoz serves on the Board of Directors of the American Board of Obesity Medicine and holds leadership roles with The Obesity Society and the American Association of Clinical Endocrinology.
His clinical and academic work focuses on comprehensive obesity care, integration of nutrition and lifestyle, reduction of health disparities, and long-term outcomes after bariatric surgery.


Rachel BATTERHAM
Senior Vice President, International Medical Affairs, Eli Lilly and Company
Professor Rachel Batterham is Senior Vice President, International Medical Affairs at Eli Lilly and Company. She is internationally recognized for pioneering research showing how gut hormones can be used to treat obesity, and she brings decades of hands-on experience caring for people living with obesity.
Before joining Lilly, Rachel was Professor of Obesity, Diabetes and Endocrinology at University College London (UCL) and an Honorary Consultant at University College London Hospitals (UCLH). She founded and led the UCL Centre for Obesity Research and served as the Royal College of Physicians’ Special Adviser on Obesity. She continues as an Honorary Professor at UCL and Honorary Consultant at UCLH.
In 2022, Rachel was awarded an OBE (Officer of the Order of the British Empire) by the late Queen Elizabeth II for services to people with obesity—recognizing a 25- year career spanning basic science, Phase 1–4 clinical trials, and influence on public policy.
Rachel is passionate about reducing stigma and amplifying the patient voice in research and care. In 2017, she founded the Obesity Empowerment Network UK, a charity that ensures people affected by obesity help shape policy, research, and services. At Lilly, she partners with clinicians, advocacy groups, and health systems to help more people access effective, compassionate care.

Manu CHAKRAVARTHY, MD, PhD
Senior Vice President and Global Head of Cardiovascular, Renal, and Metabolism Product Development, Roche-Genentech

Manu CHAKRAVARTHY, MD, PhD
Senior Vice President and Global Head of Cardiovascular, Renal, and Metabolism Product Development, Roche-Genentech
Dr. Manu Chakravarthy is a physician– scientist and visionary leader in drug development with over two decades of experience turning scientific discoveries into transformative therapies. Recognized internationally as a thought leader in metabolic diseases, he has shaped the field through high-impact publications and keynote lectures worldwide.
He currently serves as SVP and Global Head of Cardiovascular, Renal, and Metabolism Product Development at Roche-Genentech, where he directs the strategy and execution of a portfolio addressing some of the world’s most pressing health challenges. Previously, as Head of R&D and Chief Scientific & Medical Officer at Carmot Therapeutics, he led all R&D efforts and played a pivotal role in the company’s acquisition by Roche in 2024. Earlier leadership roles include EVP and Chief Medical Officer at Axcella Therapeutics, VP and Global Head of External R&D at Eli Lilly, and Distinguished Scientist at Merck where he led Discovery Medicine in cardiometabolic diseases and contributed to multiple successful drug approvals across endocrinology, neuroscience, and infectious diseases.
Dr. Chakravarthy earned his M.D. and Ph.D. from UT Houston Medical School and MD Anderson Cancer Center. He trained in Internal Medicine at the University of Pennsylvania and completed both a Clinical Fellowship in Endocrinology, Diabetes & Metabolism and a Postdoctoral Fellowship in Lipid Metabolism at Washington University in St. Louis, where he later served on the faculty. He is board-certified in Endocrinology and serves as Adjunct Clinical Assistant Professor of Medicine at Rutgers.

Sandra ELIA
Chair, Obesity Matters; Certified Food Addiction Counselor

Sandra ELIA
Chair, Obesity Matters; Certified Food Addiction Counselor
Sandra Elia is the Chair of Obesity Matters, a national non-profit dedicated to advocacy, education, and patient support for people living with obesity. She also serves on the Novo Nordisk Chronic Disease Patient Advisory Council and is an internationally certified Food Addiction Counselor. In collaboration with leading obesity physicians, Sandra developed Canada’s first outpatient Food Addiction Recovery Program, now integrated into medical clinics nationwide, and co-created the country’s first 28-day residential treatment program at Toronto’s Renascent Rehab Centre.
She is the award-winning author of Never Enough: Three Pillars of Food Addiction Recovery and a recognized speaker on obesity, food addiction, and wellness. Sandra has partnered with organizations including Novo Nordisk, Eli Lilly, and Bausch Health, and her expertise has been featured across major Canadian media outlets.
Combining professional experience with lived experience, Sandra advances a compassionate, evidence-based approach to obesity treatment, helping to reduce stigma and empower individuals to seek treatment.

Priya JAISINGHANI, MD
Clinical assistant professor, NYU Langone Health

Priya JAISINGHANI, MD
Clinical assistant professor, NYU Langone Health
Dr. Priya Jaisinghani is a board-certified endocrinologist and obesity medicine specialist, currently serving as a Clinical Assistant Professor at NYU Grossman School of Medicine.
She completed her medical training and internal medicine residency at Rutgers Robert Wood Johnson Medical School, where she was inducted into the Alpha Omega Alpha Honor Society and received distinction in service to the community.
She went on to complete her endocrinology fellowship at NewYork-Presbyterian Weill Cornell Medical Center.
Dr. Jaisinghani is actively involved in obesity advocacy and education through the Obesity Action Coalition, the Tristate Obesity Society, and the Endocrine Society’s Obesity Special Interest Group Steering Committee.
Her academic work includes peer-reviewed publications and book chapters, including her latest on obesity and viral infections, and with recent publications appearing in Nature. Her expertise has been featured across major media outlets including ABC News, NBC News, the Today Show, New York Times, Wall Street Journal, Times of India, and Medscape.
PANEL 4 / 12:05 PM - 1:00 PM
Patient Driven Research: Reshaping the R&D Pipeline

Tania SIMONCELLI
Vice President, Translational Impact & Engagement, Chan Zuckerberg Initiative

Tania SIMONCELLI
Vice President, Translational Impact & Engagement, Chan Zuckerberg Initiative
Tania Simoncelli joined the Chan Zuckerberg Initiative in 2017 with a vision to build a program committed to centralizing essential leaders in the biomedical research ecosystem: patients. In service of this goal, she launched the Rare As One Project, a first-of-its-kind program that supports patient communities in their quest to accelerate research through grantmaking, capacity building support, and the development of new tools and partnerships. Her commitment to this work is grounded in more than twenty years of experience in advocacy and policy to address complex challenges at the intersection of science, technology, law and ethics. Previous roles include serving as Senior Advisor to Dr. Eric Lander at the Broad Institute of MIT and Harvard; Assistant Director of Forensic Science and Biomedical Innovation at the White House Offi ce of Science and Technology Policy; Special Assistant to Commissioner Margaret Hamburg at the U.S. Food and Drug Administration; and Science Advisor to the American Civil Liberties Union.
Simoncelli holds a B.A. in Biology and Society from Cornell University and an M.S. in Energy and Resources from UC Berkeley and is co-author with Sheldon Krimsky of Genetic Justice: DNA Data Banks, Criminal Investigations and Civil Liberties (Columbia University Press: 2011). In 2013, Simoncelli was named by the journal Nature as “one of 10 people who mattered” for her work in spearheading the ACLU’s successful Supreme Court case challenging the patenting of human genes. In 2021, she was elected to the rank of AAAS Fellow “for remarkable, high-impact contributions to developing strategies and policies for improving the public value of science.

Marianne S. CLANCY, MPA
Chief Executive Officer and Senior Director, Strategic Partnerships, Cure HHT

Marianne S. CLANCY, MPA
Chief Executive Officer and Senior Director, Strategic Partnerships, Cure HHT
Ms. Clancy has been CEO of Cure HHT for 24 years. Under her leadership, she initiated the Cure HHT research grant funding program to established and young researchers.
Under her tenure, through the investment of $3 Min seed grants since 2004, HHT research funding has been leveraged nearly $60M in private and public investment. She has been instrumental in providing the patient voice to the design of HHT clinical research trials. Marianne has expanded access to expert HHT care through the establishment and management of 33 HHT Centers of Excellence in North America and 25 centers globally. Her work in obtaining release of the HHT gene patents led to the launch of genetic testing for HHT in North America. Her team has led collaborations to enable the robust growth of the International Scientific Conferences in HHT since 2001 as the sole sponsor of these convenings. She is the principal investigator in the patient led international HHT research network funded by the Chan Zuckerberg Rare as One grant. Through Cure HHT, she has led funding initiatives for 2 International HHT Guidelines conferences resulting in standardized HHT diagnostic and treatment guidelines for health care professionals.
Marianne has led the HHT legislative initiatives and secured federal funding for HHT Centers of Excellence in the U.S., launched the first Comprehensive Natural History Registry Natural History Study and a Continuing Medical Education program. and has been a global educator and advocate on HHT issues to government agencies, physician, patient and biotech pharmaceutical partners.
In 2022, Marianne created a Therapeutic arm at Cure HHT to accelerate research translation, clinical trials and new therapeutic development and treatment for the global patient community.

Michaela DINBOECK
Head of Patient Engagement (PE), Novartis

Michaela DINBOECK
Head of Patient Engagement (PE), Novartis
Michaela Dinboeck leads the Novartis global PE strategy and systematic implementation across the enterprise portfolio, starting at early development stage, through to regulatory and value dossier submissions. The team creates a deep understanding of patient communities and their lived experiences and establishes long-term relationships to inform decision making. Key focus areas are PE Science, to develop robust methods for Patient Experience Data generation and Clinical Representativeness to ensure patients included in clinical trials represent the population new medicines are intended for. The remit includes PE Governance, Capability building and Impact Measurement for the company. Ms Dinboeck’s vision is to embed systematic PE in decision making and Patient Focused Drug Development along the lifecycle of medicines.
Ms Dinboeck moved to Patient Engagement after 20 years in Commercial and General Management positions within the Pharmaceutical and Medical Device Industry at country, regional and global level. In her roles she worked across multiple disease areas in established and emerging health care systems. She has lectured Business at Universities in Bolivia and Malaysia. In addition to her role as Head Patient Engagement, Ms Dinboeck serves on the Board of Novartis Pharma GmbH Germany.

Sunitha MALEPATI
Founder & CEO, Buffalo Initiative

Sunitha MALEPATI
Founder & CEO, Buffalo Initiative
Sunitha Malepati is the Founder & CEO of the Buffalo Initiative, a bold effort to accelerate treatments for rare pediatric brain diseases by rethinking how drug development is financed, governed, and brought to patients. After her daughter was diagnosed with a neurogenetic disorder, Sunitha launched Buffalo to close the gap between scientific discovery and the families often left behind by traditional drug development models.
An attorney with a background in private investment and nonprofit law, Sunitha brings a unique mix of legal, entrepreneurial, and advocacy experience to the rare disease space. She also serves as Vice President of the CACNA1A Foundation and sits on the Governing Board of COMBINEDBrain, a collaborative consortium focused on advancing clinical trial readiness for rare neurodevelopmental disorders. Sunitha has been nationally recognized for her leadership in patient-driven innovation. She is passionate about elevating rare disease families from storytellers to strategic partners in building a smarter, more inclusive future for medicine.

Amit RAKHIT, MD, MBA
Chief Medical Officer, BlueRock Therapeutics

Amit RAKHIT, MD, MBA
Chief Medical Officer, BlueRock Therapeutics
Dr. Amit Rakhit is an experienced pharmaceutical and biotech executive and has led teams in developing medicines to transform medical practice across multiple therapeutic areas including oncology, neurology, rare diseases, and cardiovascular conditions. He is particularly interested in building innovative bridges between the biotech industry, health technology, and the patient community to better meet the needs of patients and their caregivers. He is currently the Chief Medical Officer at BlueRock Therapeutics.
His previous roles have been in various C-suite positions helping companies build and grow from the start-up phase, IPO, and operating entities. He was most recently CEO at Flare Therapeutics and previously at Sporos Bioventures. Prior to this role, Amit was President and Chief Medical Officer at Ovid Therapeutics where he joined in the start-up phase and worked with the team through the IPO and subsequent pipeline development.
Between 2011-2016, he had senior-level roles at Biogen including Head of Worldwide Medical where he led a team of approximately 800 professionals in medical activities for marketed and pipeline compounds in the disease areas of multiple sclerosis, neurodegenerative diseases, dementia, and hemophilia. He also led the global development programs for therapies in orphan and rare disorders such as dexpramipexole for ALS and Spinraza (nusinersen) for spinal muscular atrophy.
Prior to Biogen, he was with Bristol-Myers Squibb where he led an international medical team of 300+ professionals across 27 countries with a cross-therapeutic area focus that included cardiovascular, metabolics, oncology, HIV, virology, immunology, and neuroscience products.
His education includes Harvard fellowship training in Pediatric Cardiology at Boston Children’s Hospital, MD from Tufts University, a BA from the University of California, Berkeley, and dual MBAs from Columbia Business School and London Business School.

Josh SOMMER
Co-Founder and Executive Director, Chordoma Foundation

Josh SOMMER
Co-Founder and Executive Director, Chordoma Foundation
Josh Sommer is the co-founder and executive director of the Chordoma Foundation, an organization focused on improving the lives of people affected by the rare cancer chordoma, and leading the search for a cure.
With a sense of urgency prompted by his own chordoma diagnosis 18 years ago, Josh has built a global movement of patients, doctors and researchers to drive progress towards better treatments, better care, and a better experience for those affected by chordoma.
Under his leadership, the Foundation is pioneering an emerging model of patient-driven research through its in-house research laboratory, which is enabling collaborations with researchers and companies applying AI and other emerging technologies and dramatically speeding the pace of drug discovery.
The Foundation’s efforts have helped translate scientific advances into fourteen clinical trials for chordoma patients.
PANEL 5 / 1:05 PM - 2:00 PM
AI & Patient Data: Balancing Promise, Privacy, and Trust

Eric HORVITZ, MD, PhD
Chief Scientific Officer, Microsoft
Eric Horvitz, MD, PhD, is Chief Scientific Officer of Microsoft, where he guides company-wide research and strategic initiatives in AI, biosciences, and medicine.
He has led pioneering efforts to apply AI in both clinical and consumer health contexts.
Dr. Horvitz has been recognized with the Feigenbaum Prize and Allen Newell Award for groundbreaking contributions to artificial intelligence and was inducted into the SIGCHI Academy for his work in human-AI collaboration.
He is a member of the National Academy of Engineering, the American Academy of Arts and Sciences, and the American Philosophical Society, and has been elected fellow of AAAI, ACM, the American College of Medical Informatics, and AAAS.
His leadership roles have included serving as president of AAAI, commissioner on the National Security Commission on AI, and member of the President’s Council of Advisors on Science and Technology, the Board of Regents of the National Library of Medicine, and the Computer Science and Telecommunications Board.
He received both his MD and PhD from Stanford University.


Grace CORDOVANO, PhD, BCPA
Founder, Enlightening Results; Co-Founder, Unblock Health
Grace Cordovano, PhD, BCPA is an internationally recognized, award-winning, board-certified patient advocate, strategist, and founder of Enlightening Results. She has dedicated her career to helping patients and their carepartners “navigate the unnavigable” across complex cancer, rare disease, and catastrophic diagnoses. Known as the “House” of patient navigation, Dr. Cordovano equips patients with the most pertinent, medically credible, and easy to understand information, tools, and technologies to make informed decisions about their care, spanning survivorship, palliative care, and end of life planning.
With more than 25 years of experience, she is a leading voice on digital health, clinical trials, AI governance, data interoperability, and techquity. As co-founder of Unblock Health, she empowers patients and carepartners with modern tools to access and correct their electronic health information while addressing patient administrative burden.
Dr. Cordovano frequently serves in advisory and leadership roles, such as HITAC, The Sequoia Project, CancerX, DiMe, and the National Academy of Medicine’s AI Code of Conduct project. Featured in StatNews, US News and World Report, Politico, MobiHealthNews, and other leading publications, she is widely recognized for shaping the future of patient centered care and championing techquity, rights, and innovation.

David FAJGENBAUM, MD, MBA, MSc
Co-Founder & President, Every Cure,; Associate Professor of Medicine, University of Pennsylvania

David FAJGENBAUM, MD, MBA, MSc
Co-Founder & President, Every Cure,; Associate Professor of Medicine, University of Pennsylvania
David Fajgenbaum, MD, MBA, MSc, is Co- Founder and President of Every Cure and a physician-scientist at the University of Pennsylvania, where he is one of the youngest faculty members ever to receive tenure at Penn Medicine. A patient battling a rare and life-threatening disease, Dr. Fajgenbaum discovered a repurposed treatment that saved his own life—a story he chronicled in his national bestselling memoir ‘Chasing My Cure‘, which is being adapted into a film by Forrest Gump producer Wendy Finerman. He has since advanced 13 more repurposed treatments for cancer and rare diseases and co-founded Every Cure to unlock more hidden cures from existing medicines. Every Cure has received over $100M from ARPA-H and TED’s Audacious Project. Earlier in his career, Dr. Fajgenbaum co-founded the Castleman Disease Collaborative Network (CDCN), which has transformed the research and treatment of Castleman disease and serves as a model for accelerating progress against other rare conditions.
One of the youngest recipients of multiple top NIH and FDA grants, Dr. Fajgenbaum has authored over 100 scientific papers in leading journals, including The New England Journal of Medicine, The Lancet, and The Journal of Clinical Investigation. He has been profiled by The New York Times, Good Morning America, TODAY, and Forbes 30 Under 30 and has received numerous honors, including the 2016 Atlas Award alongside then VP Joe Biden, 2022 NDRI Service to Science Award alongside Nobel Laureates Katalin Kariko and Drew Weissman, 2023 Philadelphia Citizen of the Year Award, and selection to the 2025 TIME100 Health list of the world’s most influential people in health. Dr. Fajgenbaum earned a BS from Georgetown University, MSc from the University of Oxford, MD from the University of Pennsylvania, and MBA from The Wharton School. While in college, David was a Division I quarterback and founded and led a national support network for grieving college students.


Aaron MITCHELL
Managing Principal, R&D Excellence, ZS
With more than 17 years of experience at ZS, Aaron currently serves as ZS’s global R&D solution area lead. In this role, Aaron partners with clients to strengthen the value of their pipelines, optimize the execution of clinical trials, drive the effective use of real-world evidence and improve medical and scientific engagement.
Aaron has extensive experience bringing together integrated teams of experts to deliver impact from R&D to commercialization. He has a wealth of personal experience working with clients on disease area strategy, clinical development strategy, clinical trial design and optimization, patient prediction, real-world evidence, medical strategy and business development and licensing. During his time at ZS, Aaron has worked in many different therapy areas, including oncology, rheumatology, dermatology, respiratory, cardiology, bone and metabolic, migraine and nephrology. Prior to leading the R&D solution area, Aaron led the ZS offices in Los Angeles and San Diego, where he worked with biotech companies to develop their commercial and R&D capabilities.
Before ZS, Aaron worked at Deloitte, served as an engineer in the biotech industry and was an officer in the U.S. Army.
Aaron holds a Bachelor of Science degree in mechanical engineering from the United States Military Academy at West Point, and an MBA from the Haas School of Business at the University of California, Berkeley.

Navraj NAGRA, MD, PhD
Associate Partner, McKinsey & Company; Leader in McKinsey’s R&D Strategy, Portfolio, AI and Transformation practices

Navraj NAGRA, MD, PhD
Associate Partner, McKinsey & Company; Leader in McKinsey’s R&D Strategy, Portfolio, AI and Transformation practices
Nav Nagra, MD, PhD, is an Associate Partner in McKinsey’s London office, where he serves clients in the Life Sciences space at the intersection of R&D productivity and technology.
He has led large-scale transformations of global R&D functions, where AI has been central to unlocking significant productivity gains, and works at the cutting-edge of implementing Agentic AI for leading pharmacos. He has supported pharmacos to build net-new AI-first discovery pipelines, accelerate and de-risk medicine clinical development timelines (by over 2-years), and identify novel indications for medicines to broaden impact of medicines.
Having practised as an MD, Nav completed his PhD in Biomedical Data Science at the University of Oxford, publishing his research in over twenty papers in peer-reviewed journals, including British Medical Journal (BMJ), Annals of Surgical Oncology, New England Journal of Medicine: Catalyst, and Nature Reviews Drug Discovery - and presenting internationally. Nav also conducted his postdoctoral research as a Fulbright Scholar, in Michael Porter’s Institute for Strategy and Competitiveness - Harvard Business School, and the PROVE Center (Brigham and Women’s Hospital); where his paper on optimising breast cancer care is still taught today.
Nav has been recipient of multiple scholarships, most notably, the All Awards Fulbright Scholarship, Royal College of Surgeons Academic award, and the Royal Society of Medicine’s President’s Prize.

Sarah C. ROSSETTI, RN, PhD, FACMI, FAMIA
Associate Professor of Biomedical Informatics and Nursing

Sarah C. ROSSETTI, RN, PhD, FACMI, FAMIA
Associate Professor of Biomedical Informatics and Nursing
Sarah Rossetti, RN, PhD is an Associate Professor of Biomedical Informatics and Nursing at Columbia University. Her research has been funded by NIH, AHRQ, ASTP and ANF and is focused on identifying and intervening on patient risk for harm and reducing excessive documentation burden by applying computational tools to mine and extract value from EHR data and leveraging user-centered design for patient-centered technologies.
She co-leads the CONCERN Early Warning System study which uses AI methods to predict patient deterioration based on nursing surveillance patterns and has been shown to significantly decrease patient mortality, sepsis, and length of stay. She is chair of AMIA’s 25×5 Task Force to Reduce Documentation Burden.
Dr. Rossetti is an experienced critical care nurse, received her PhD from Columbia University School of Nursing, and completed a Post-Doctoral Research Fellowship at Columbia University’s Department of Biomedical Informatics. She was selected as a 2019 recipient of the Presidential Early Career Award for Scientists and Engineers (PECASE) and 2024 co-recipient of the Donald A.B. Lindberg Award for Innovation in Informatics by AMIA.
PANEL 6 / 2:05 PM - 3:00 PM
Sickle Cell Disease : Focusing on the Forgotten Patients

Greta VAN SUSTEREN
Host of Newsmax Show « The Record »
Greta Van Susteren is the host of The Record with Greta Van Susteren on Newsmax TV, airing weekdays at 4 p.m. ET. Since joining Newsmax, she has reported extensively on major global crises, including the Ukraine war—where she interviewed President Volodymyr Zelensky—Israel’s October 7 conflict— interviewing Prime Minister Benjamin Netanyahu—and the humanitarian crisis at the Darien Gap in Colombia.
Before Newsmax, Greta hosted Gray TV’s nationally syndicated Full Court Press and served as Chief National Political Analyst. During the pandemic, she co-hosted 36 daily coronavirus specials and produced documentaries for Voice of America, including Displaced, an award-winning film on the Rohingya crisis. She also anchored Plugged In, a VOA program broadcast worldwide in multiple languages.
Greta previously anchored at CNN, Fox News, and MSNBC. At Fox, she hosted On the Record for 14½ years, consistently the top-rated cable news program in its time slot. She has interviewed numerous U.S. presidents, world leaders, military officials, and cultural figures.
A lawyer by training, Greta has tried murder cases, argued appeals, and taught at Georgetown Law. Forbes named her six times among the “100 Most Powerful Women.” She is a recipient of Ukraine’s Order of Merit and multiple journalism awards. Greta lives in Washington, D.C., with her husband, John P. Coale.

Mikael DOLSTEN, MD, PhD
Chair, Prix Galien Bridges Committee; Board member Novo Nordisk & Agilent Technologies; Chairman, Board Director & Advisor to Biotechs, Investment & Public companies; President, DolstenConsulting, Inc.

Mikael DOLSTEN, MD, PhD
Chair, Prix Galien Bridges Committee; Board member Novo Nordisk & Agilent Technologies; Chairman, Board Director & Advisor to Biotechs, Investment & Public companies; President, DolstenConsulting, Inc.
Mikael Dolsten recently retired from Pfizer Inc after a 16-year tenure as Chief Scientific Officer and President of Pfizer Research & Development, where he oversaw the regulatory approval of over 36 medicines and vaccines, while advancing more than 150 drug candidates into clinical studies. He championed breakthrough innovations across small-molecule me-dicines, biotherapeutics, gene therapies, and vaccines and played a leading role in the globa response to theCOVID pandemic. Currently, he serves as Chair of the Prix Galien Bridges Committee and Member of the Prix Galien USA Committee.
His leadership experience includes serving as President of Wyeth Research, Executive Vice President and Head of Worldwide Research at Boehringer Ingelheim, and Global VP at AstraZeneca, managing cardiovascular, metabolic, and gastrointestinal R&D. Earlier, he led R&D at Astra Draco (pulmonary & inflammation) and headed Immunology-Oncology research at Pharmacia, Sweden. During his 30+ years as an R&D leader, he has been connected to some 50 drug and vaccine appro-vals and several hundreds of novel candidate drugs transiting to clinical studies. Dr. Dolsten has VC expe-rience from work with Orbimed, ATP, and Pfizer ven-ture groups and has been involved in numerous small and large corporate business transactions exceeding 100B$ in size.
He currently sits on the public boards of Agilent Tech-nologies, Novo Nordisk and Rocket Pharmaceuticals. He also serves as chairman, board member, or advisor of several private Biotechs, including Orbis Medicine, Fair Journey Biologics, ImmuneAi, Arbor Biotechnologies, Orogen Therapeutics, and ChAI discovery. He is investment advisor to Blackstone Life Sciences, GV (legacy Google Ventures), Bais & Co, and Formation Bio. His supervisory affiliations include the Scripps Research Institute, the Foundation for the NIH, Research America and membership in The Royal Swedish Academy of Engineering Sciences. Dr Dolsten has advised Obama, Biden, rump administrations in public health initiatives, and the UK Government’s G7 leadership for pandemic responses. With over 160 scientific publications and numerous patents, Dr. Dolsten holds both a Ph.D. in Tumor Immunology and an M.D. from the University of Lund, Sweden, where he serves as a Visiting Professor.

Solomon F. OFORI-ACQUAH, PhD
Professor of Pediatrics and Calvin Smyre Endowed Chair; GRA Eminent Scholar and Director, Georgia Solve Sickle Cell Initiative, Emory University School of Medicine; Vice Chair of Research, Department of Pediatrics, Morehouse School of Medicine

Professor of Pediatrics and Calvin Smyre Endowed Chair; GRA Eminent Scholar and Director, Georgia Solve Sickle Cell Initiative, Emory University School of Medicine; Vice Chair of Research, Department of Pediatrics, Morehouse School of Medicine
Dr. Solomon Fiifi Ofori-Acquah is an internationally recognized leader in sickle cell disease (SCD) research and genetics. He holds the Calvin Smyre Endowed Chair and is a Georgia Research Alliance Eminent Scholar at Emory University, where he also serves as Director of the Georgia Solve Sickle Cell Initiative, a collaborative program involving Emory University, Children’s Healthcare of Atlanta, and Morehouse School of Medicine. He is a Member of the NIH National Heart, Lung, and Blood Advisory Council.
Dr. Ofori-Acquah developed the first animal model of acute chest syndrome significantly advancing preclinical research in the field. He is the Founding Director of the West African Genetic Medicine Centre (WAGMC) at the University of Ghana, where he leads efforts to build capacity in genetics across the region.
He also directs the Sickle Cell Disease Genomics of Africa Network, part of the H3Africa Consortium, and the Ghanaian Genome Project, which aims to develop graduate training programs in human genetics, strengthen the genetic health workforce in Ghana, and implement public education and screening initiatives for genetic disorders across West Africa.
His current research focuses on a genome-wide association study (GWAS) in SCD and Ghana’s first population-based DNA sequencing project, which is initially centered on a cohort of 1,000 children living with SCD.
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Ifeyinwa (Ify) OSUNKWO, MD, MPH
Chief Patient Officer, Rare Disease, Novo Nordisk
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Dr. Ifeyinwa (Ify) Osunkwo, Chief Patient Officer for Rare Disease at Novo Nordisk, leads efforts to transform the lives of patients with rare diseases through equitable access to care, innovative treatment solutions, and strengthened partnerships with global patients and community stakeholders.
With over 30 years of experience as a hematologist, clinical trialist and sickle cell expert, Dr. Osunkwo has dedicated her career to addressing health disparities and building holistic, patient-centered healthcare solutions.
At Novo Nordisk, she plays a pivotal role in driving the company’s patient-centric portfolio approach to rare diseases, emphasizing collaboration, empowerment, and health equity.
Dr. Osunkwo’s extensive expertise in population health and health literacy positions her to deliver lasting impacts for patients and communities, reflecting Novo Nordisk’s commitment to redefining care for rare disease patients worldwide. Her leadership in patient advocacy strategy spans the entire development continuum, ensuring that patient voices are integral to every stage of the process.

Swee Lay THEIN, MD, DSC
Senior Investigator and Branch Chief, Sickle Cell Branch; National Heart, Lung and Blood Institute / National Institutes of Health

Senior Investigator and Branch Chief, Sickle Cell Branch; National Heart, Lung and Blood Institute / National Institutes of Health
Swee Lay Thein, MD, DSc, is a physician-scientist with more than 30 years of clinical and translational hematology research and extensive personal experience in laboratory research – molecular biology, genetics and genomics. Dr. Thein joined the National Heart, Lung and Blood Institute / NIH in spring 2015 as Senior Investigator and Chief of the Institute’s Sickle Cell Branch.
Swee Lay Thein completed her specialist training in general medicine and hematology at the Royal Postgraduate Medical School, Hammersmith, and the Royal Free Hospital, London, UK. She has also worked in Oxford at the Weatherall Institute of Molecular Medicine (MRC Molecular Hematology Unit) where she held various positions, including MRC clinical training fellow, Wellcome Senior Fellow in Clinical Science, senior MRC clinical scientist, and at the John Radcliffe Hospital as honorary consultant hematologist. In 2000, she moved to King’s College London/King’s College Hospital, as Professor of Molecular Hematology/ consultant hematologist and director of the Red Cell Centre. In 2003, she was elected a Fellow of the Academy of Medical Sciences (FMedSci), UK. Her research was chosen by scientists as one of the top 10 biggest science stories in 2022 (The Guardian), and in 2024, she was co-recipient of the Shaw Prize in Life Sciences & Medicine. In 2025 she was inducted into the Association of American Physicians and awarded the Helen M. Ranney prize. She was recently elected to the Fellowship of the Royal Society, the UK’s national academy of sciences.
STRATEGIC PARTICIPATIVE ASSEMBLY / 3:05 PM - 4:00 PM
Designing a New Patient-Centric Model

Karla CHILDERS, BA, MSJ, MBE
Vice President Bioethics, Policy & Partnerships, Office of the Chief Medical Officer, Johnson & Johnson

Karla CHILDERS, BA, MSJ, MBE
Vice President Bioethics, Policy & Partnerships, Office of the Chief Medical Officer, Johnson & Johnson
Karla Childers is Vice President of Bioethics, Policy & Partnerships in the Office of the Chief Medical Officer at Johnson & Johnson. With a multidisciplinary foundation in chemistry, health law, and bioethics, Karla brings a unique lens to navigating complex ethical challenges in biomedical innovation.
The team she leads focuses on fostering responsible R&D practices, shaping ethics-based policies, and building key strategic partnerships that prioritize patient welfare, societal trust, and innovation. Karla is deeply committed to advancing ethical leadership across the life sciences and serves on the board of the Fellowships at Auschwitz for the Study of Professional Ethics (FASPE), a nonprofit organization dedicated to promoting ethical leadership and responsibility among professionals.
Karla’s leadership is grounded in a belief that ethical progress must accompany scientific advancement. She draws on a 20+ year history in the pharmaceutical industry, as well as her personal experience as a patient advocate for family members, to bring that belief to life. She also has a passion for teaching and is grateful to serve as a lecturer for Columbia University in the same program where she earned her Master of Bioethics.

Aaron LEIBTAG
CEO & cofounder, PENTAVERE (a HEALWELL AI company)

Aaron LEIBTAG
CEO & cofounder, PENTAVERE (a HEALWELL AI company)
Aaron Leibtag is the CEO and Co-Founder of Pentavere (a Healwell AI company), a globally recognized healthcare AI company built on a Patient-First philosophy.
Inspired by the tragic loss of his partner’s mother to an overlooked medical detail, he co-founded Pentavere to ensure no patient is ever missed.
Under his leadership, the company’s AI innovations led to the invention of a major AI patent, impacted more than one million lives, and were published and validated in over 40 leading medical journals.
Pentavere was recognized by Newsweek for advancing health equity through AI and awarded the 2024 Prix Galien USA Award for Best Digital Health Startup.
Its success ultimately led to acquisition by Healwell AI, where it now serves as a cornerstone for advancing disease detection and preventative care worldwide.