Galien week of innovation
PROGRAM
Registration & Networking: 7:30 AM I Welcome Remarks: 8:35 AM
Each panel will open with five minutes giving voice to the Patient First experience in the Audience.
chair
Katie Mazuk
Chief Patient Experience Officer, Novartis US
PANELISTS
Uché Blackstock
Founder & CEO, Advancing Health Equity
Molly Guthrie
VP, President, Policy & Advocacy, Susan G. Komen
Michael Hodin
CEO, Global Coalition on Aging; Managing Partner, High Lantern Group
John M. O’Brien
President & Chief Executive Officer, National Pharmaceutical Council
BACKGROUND AND TOPICS FOR DISCUSSION:
Scientific breakthroughs in drug discovery and clinical research hold enormous promise. But the real test of innovation lies beyond the laboratory: whether life-changing treatments reach the people and communities who need them most. Too often, new therapies face barriers of affordability, access, and awareness, leaving the benefits of innovation unevenly distributed.
This panel confronts the central challenge of healthcare today: having groundbreaking treatments is only half the equation; ensuring they are accessible, affordable, and effectively delivered is the other. What does it take to transform scientific progress into measurable patient outcomes? How do we expand prevention and screenings, particularly for cardiovascular disease and cancer, so that early intervention becomes the norm rather than the exception?
The conversation explores critical questions: how can health systems and payers address affordability and adherence? What role do advocacy organizations play in breaking down barriers to awareness and care? And how can community-led models (rooted in trust, education, and prevention) reshape the trajectory of patient health?
At stake is more than access to treatment; it is the promise of healthier, longer lives for every community. By bringing together leaders from policy, advocacy, industry, and grassroots health access initiatives, this panel will examine what it takes to ensure that innovation is not just discovered but delivered—creating a future where science and community come together to secure lasting health for all.
CHAIR
Vice President & Publisher, Scientific American
PANELISTS
Michael Clinton
Founder & CEO, ROAR Forward
Patrick Kullenberg
Chief Innovation Officer, North America, L’Oréal Groupe
David Luu
Founder, Longevity Docs
Qian Zheng
Senior Vice President of Advanced Research, North America and Global Head of Regenerative Beauty, L’Oréal Groupe
BACKGROUND AND TOPICS FOR DISCUSSION:
Populations are living longer than ever before, yet those extra years are not always lived in good health. Advances in integrative science, regenerative research, and AI-driven technologies are opening new frontiers to close the gap between lifespan and healthspan.
Founded by a chemist, L’Oréal Groupe has placed science at the heart of its mission for more than 115 years. With 4,000 researchers worldwide and more than 15 years of advanced longevity research reflected in 43 publications, the company is pioneering Longevity Integrative Science™. This work has decoded skin aging at the cellular, molecular, and tissue levels, created the Wheel of Longevity for Beauty, and developed the Longevity AI Cloud™, which maps more than 260 skin biomarkers. Partnerships with leading biotech companies, such as Timeline and Senisca, strengthen this research, while findings confirm that skin is not only a reflection of health but a predictive marker of systemic aging.
This panel will explore how science and culture converge to redefine aging—from targeting the root causes of biological decline to embracing new cultural narratives. Panelists will discuss how empowering individuals with predictive tools, regenerative innovations, and inclusive perspectives can unlock the full potential of longevity for patients and consumers alike.
CHAIR
Keri Hildick
Chief Strategy Officer, Perspectum
PANELISTS
Jaime Almandoz
Associate Professor of Internal Medicine & Medical Director, Weight Wellness Program, UT Southwestern Medical Center
Rachel Batterham
Senior Vice President, International Medical Affairs, Eli Lilly and Company
Manu Chakravarthy
SVP & Global Head of Cardiovascular, Renal, and Metabolism Product Development, Roche-Genentech
Sandra Elia
Chair, Obesity Matters; Certified Food Addiction Counselor
Priya Jaisinghani
MD, DABOM Clinical Assistant Professor, NYU Langone Health, Media Expert
BACKGROUND AND TOPICS FOR DISCUSSION:
For decades, body mass index (BMI) has dominated the conversation on obesity. Yet the science is clear: obesity is a complex, chronic condition influenced by biology, behavior, environment, and systemic inequities. As new therapies, diagnostics, and imaging technologies emerge, the question is no longer whether we can treat obesity, but how to do so with precision, equity, and compassion.
This panel examines the transformation of obesity care from a blunt measure of weight to a nuanced, patient-centered approach. Can predictive tools, advanced medicines, and minimally invasive interventions personalize treatment in ways that radically improve outcomes? How can we deploy innovative solutions through patient-partnered trials so that the patient voice drives design, execution and end-to-end development? And how do we integrate these innovations into health systems long constrained by stigma, limited resources, and outdated cultural assumptions?
The discussion will also explore the social dimensions of obesity: the influence of food access, socioeconomic status, and cultural norms on patient health. How do we dismantle harmful biases, such as the perception of obesity as a lifestyle “choice”, that undermine care and equity? And how can we better incorporate patient voices to ensure that new models of precision care serve the whole person, not just the clinical diagnosis?
At its core, the panel asks: what will it take to move beyond BMI and toward an era where obesity care is personalized, equitable, and truly transformative?
LUNCH BREAK
11:50 AM - 12:20 PM
Chair
KEYNOTE
12:20 PM - 12:40 PM
Matthew Zachary, Founder, We The Patients
CHAIR
Tania Simoncelli
Vice President, Translational Impact and Engagement, Chan Zuckerberg Initiative
PANELISTS
Marianne Clancy
CEO and Managing Director, Strategic Partnerships, Cure HHT
Michaela Dinboeck
Head, Patient Engagement, Novartis
Sunitha Malepati
VP & Treasurer, CACNA1A Foundation and Founder & CEO, Buffalo Initiative
Amit Rakhit
Chief Medical Officer, BlueRock Therapeutics
Josh Sommer
Co-Founder & Executive Director, Chordoma Foundation
CHAIR
Tania Simoncelli
Vice President, Translational Impact and Engagement, Chan Zuckerberg Initiative
PANELISTS
Marianne Clancy
CEO and Managing Director, Strategic Partnerships, Cure HHT
Michaela Dinboeck
Head, Patient Engagement, Novartis
Sunitha Malepati
VP & Treasurer, CACNA1A Foundation and Founder & CEO, Buffalo Initiative
Amit Rakhit
Chief Medical Officer, BlueRock Therapeutics
Josh Sommer
Co-Founder & Executive Director, Chordoma Foundation
BACKGROUND AND TOPICS FOR DISCUSSION:
From rare disease advocacy to large-scale translational science, patients are no longer just subjects of research, they are leaders reshaping how innovation happens. By creating registries, driving data collection, and directly funding studies, patient communities are accelerating discovery timelines that once spanned decades.
This panel highlights the paradigm shift toward patient-driven research. What does it mean when patients set priorities for discovery, design clinical trials, and partner with industry to validate new therapies? How do we operationalize this model at scale, ensuring that patients are not just included but empowered as co-creators of biomedical progress?
The discussion will examine rare diseases as a proving ground for this new approach, while exploring how lessons can be applied to broader global health challenges. Central questions include: what infrastructure and resources are needed to sustain patient-led innovation? How can industry, academia, and government adapt to a system where patients demand – not request – a seat at the table?
Ultimately, this panel confronts the systemic inequities that still constrain patient power. Ensuring that every patient community has a voice requires realignment of research priorities, new funding models, and legal frameworks that enable shared ownership of data and discoveries. The goal is not incremental change but a fundamental redesign of the R&D pipeline, one where patients are recognized as essential innovators driving a more equitable and effective future for global health.
CHAIR
Eric Horvitz
Chief Scientific Officer, Microsoft
PANELISTS
Grace Cordovano
CEO | Board-Certified Patient Advocate, Enlightening Results, LLC
David C. Fajgenbaum
Co-Founder & President, Every Cure; Prof. of Medicine, University of Pennsylvania
Aaron Mitchell
Managing Principal,
R&D Excellence, ZS
Navraj Nagra
Associate Partner, McKinsey & Company; Leader in McKinsey's R&D Strategy, Portfolio, AI and Transformation practices
Sarah C. Rossetti
Associate Professor of Biomedical Informatics and Nursing, Columbia University
Artificial intelligence thrives on data, and in healthcare, patient data is among the most valuable – and sensitive – resources available. With AI promising to accelerate discovery, improve diagnostics, and personalize care, the question is not whether patient data will fuel progress, but how it can be used responsibly, ethically, and equitably.
This panel examines the crossroads of innovation and responsibility. How can we unlock the power of AI to deliver better outcomes without sacrificing patient privacy and trust? What governance models, evidence standards, and safeguards are needed to ensure that “black box” algorithms serve patients rather than perpetuate bias or inequity?
The conversation will probe deeper systemic issues: how can patients themselves have greater agency in how their data is shared? What new partnerships between industry, regulators, and advocacy groups are required to define responsible AI use? And what would true transparency look like in systems that increasingly shape diagnosis, treatment, and access?
At stake is the balance between promise and peril. AI could revolutionize medicine, or it could deepen divides. This discussion will confront the choices that determine whether patient data becomes a tool for empowerment or exploitation.
STRATEGIC PARTICIPATIVE ASSEMBLY
3:05 PM - 3:55 PM
Designing a New Patient-First Model
CO-MODERATORS
Karla Childers
Vice President, Bioethics, Policy & Partnerships, Johnson & Johnson
Aaron Leibtag
CEO & Co-Founder, Pentavere (a HEALWELL AI company)
BACKGROUND AND TOPICS FOR DISCUSSION:
MODERATOR
Greta Van Susteren
Host of Newsmax Show «The Record»
PANELISTS
Melissa Creary
Associate Professor of Health Management and Policy and Global Public Health, School of Public Health at the University of Michigan
Olivier Hermine
Head of the Department of Hematology, Necker Hospital, Paris
Ify Osunkwo
Chief Patient Officer & VP, Rare Disease, Novo Nordisk; Director, Sickle Cell Transitions Program
Solomon F. Ofori-Acquah
Professor of Pediatrics and Calvin Smyre Endowed Chair; GRA Eminent Scholar and Director, Georgia Solve Sickle Cell Initiative, Emory University School of Medicine; Vice Chair of Research, Department of Pediatrics, Morehouse School of Medicine
Sickle cell disease (SCD) is one of the world’s most pervasive yet neglected conditions, affecting millions across Africa, South America, India, and beyond. While recent scientific advances have raised hopes, treatment pathways remain uneven; in some cases, promising therapies have stumbled or failed. The gap between what is possible and what patients actually receive remains profound.
This panel examines the urgent challenges of tackling SCD across geographies. Why have treatments like Adakveo and Oxbryta fallen short, and what can be learned from recent failed studies? How can collaborations between organizations like the NIH and biopharma accelerate progress? And most critically, how can we build pathways that extend beyond high-resource countries to address the vastly larger patient populations in regions most affected?
The conversation will explore not only biomedical strategies but also the systemic inequities that leave millions without access to care. From clinical infrastructure to global partnerships, what will it take to transform SCD from a neglected disease into a global health priority?
At the heart of the discussion is a call to action: to ensure that sickle cell patients are no longer forgotten, but recognized, prioritized, and supported with the same urgency as patients facing other chronic and genetic diseases.
5:05 PM - 5:10 PM I Closing Remarks
TOP SCIENTISTS & KOL
Interested in seeing who has spoken at our events? Check out our impressive roster of Top Scientists and Key Opinion Leaders.
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